‘Sing Me a Story’ honors Lake Forest household
Monday marked a particular night for one Lake Forest household whose daughter, Anna, was identified with a uncommon situation at a younger age. Native highschool college students carried out a music of their honor, and it was all based mostly on a guide written by Anna’s sister.
LAKE COUNTY, Unwell. – One Lake Forest household, whose daughter, Anna, was identified with a uncommon situation at a younger age, celebrated a particular night on Monday.
Native highschool college students carried out a music of their honor—and it was all based mostly on a guide written by Anna’s youthful sister.
What we all know:
The heartwarming night marked a full circle second for the Odlaug household, who lives in Lake Forest.
Throughout their spring live performance on Monday night, Lake Forest Excessive Faculty college students carried out a music referred to as “The place do the Colours Go?” that was based mostly on a narrative written by 5-year-old Lily Odlaug.
Anna and Lily Odlaug’s mother, Kim, attended Lake Forest Excessive Faculty, and due to a few her former classmates—this imaginative and prescient was delivered to life.
“It’s actually highly effective and we’re simply so grateful to be a part of such an important neighborhood. Everyone seems to be so caring and supportive, they usually simply actually exit of their method to not solely assist us with Anna, however to take pleasure in Anna and all of her items,” stated Kim Odlaug.
Anna, who’s 7 years previous, was identified with Dravet Syndrome—a uncommon type of epilepsy—when she was about 9 months previous.
The situation is characterised by extended seizures typically attributable to warmth.
“We hadn’t heard of it when she was first identified. This has given us an important alternative to assist create consciousness round what Dravet Syndrome is,” stated Andrew Odlaug, Anna’s dad. “Lily has actually embraced the chance to just about characterize her sister, Anna, on this course of by serving to to put in writing the story and do the illustrations that come together with it.”
To lift consciousness about Anna’s situation, the Sing Me a Story Basis linked with the Odlaugs. The group’s co-founder attended Lake Forest Excessive Faculty with Kim Odlaug and reached out to make the mission a actuality.
To get began, Lily wrote a guide about their household as butterflies on an journey.
The composer who reworked Lily’s story into sound, David Hamilton, can be a Lake Forest Excessive Faculty graduate. He labored with the college choir throughout rehearsals in preparation for Monday’s live performance entitled, ‘Hope Lingers On.’
“The music was commissioned by the Sing Me a Story Basis. They pair composers to convey to life tales by youngsters that write these most wonderful, magical tales, and I used to be fortunate sufficient to be requested to put in writing this piece, so it was an actual honor to convey that to life,” Hamilton stated.
On Monday night, the scholars debuted their exhausting work throughout a live performance within the college’s Raymond Moore Auditorium—a transferring efficiency for all concerned.
What’s subsequent:
By means of fundraising efforts, Anna’s household has raised greater than $2.5 million for the Dravet Syndrome Basis.
Annually, they manage ‘Dance for Dravet’—their largest annual profit—which shall be held in St. Louis on October 26, 2025.
The Supply: The knowledge on this article was reported by FOX 32’s Kasey Chronis.